Alstrom Syndrome
Hello, I have copied and paste this post from the following website. Please visit this website to learn and help with a cure for this disease. http://www.alstrom.org/ The mission of Alstrom Syndrome International (ASI) is: To provide support, information, and coordination world -wide to families and professionals in order to treat and cure Alstrom Syndrome. Alstrom Syndrome is a rare genetic disorder that affects children from birth. They will become blind, hearing impaired, and suffer from diabetes as well as enduring multiple organ failure, including the heart, liver, lungs, and kidneys. Alstrom Syndrome affects children of all nationalities and ethnicities. There is no cure yet for Alstrom Syndrome, so physicians and researchers are working to better understand the complexities of how the "Alstrom gene" works, and to develop better treatments for the multitude of problems faced by children with this syndrome. The main program areas of Alstrom Syndrome International are